February 11, 2007, at 04:32 AM
by Jignesh -
Changed lines 12-17 from:
Duke PBMT Family Support Program
2400 Pratt Street
Suite 1400
Durham, NC, 27705
to:
Duke PBMT Family Support Program,
2400 Pratt Street,
Suite 1400,
Durham, NC, 27705.
February 11, 2007, at 04:32 AM
by Jignesh -
Added line 11:
February 11, 2007, at 04:30 AM
by Jignesh -
Changed lines 2-7 from:
Target, Walmart, Food Lion Gift Cards
Small toys for Treasure Box and Bingo Prizes
Sample Size Tylenol, Motrin, Asprin, BC Powder, Tums
Washable Glitter Paint
Glitter Glue, Paintbrushes and Stickers
to:
- Target, Walmart, Food Lion Gift Cards
- Small toys for Treasure Box and Bingo Prizes
- Sample Size Tylenol, Motrin, Asprin, BC Powder, Tums
- Washable Glitter Paint
- Glitter Glue, Paintbrushes and Stickers
February 11, 2007, at 04:28 AM
by Jignesh -
Added lines 1-18:
The Child Life and Family Support at Duke PBMT is in need of the following items
Target, Walmart, Food Lion Gift Cards
Small toys for Treasure Box and Bingo Prizes
Sample Size Tylenol, Motrin, Asprin, BC Powder, Tums
Washable Glitter Paint
Glitter Glue, Paintbrushes and Stickers
If you can donate a item please contact Jane Schroeder at schro005@mc.duke.edu or 919-668-1128
The Mailing Address is:
Duke PBMT Family Support Program
2400 Pratt Street
Suite 1400
Durham, NC, 27705
To know what all support is provided please look at http://www.cancer.duke.edu/pbmt/support/family.asp
September 04, 2006, at 02:36 AM
by 75.17.116.115 -
Changed lines 4-7 from:
- Or order a test kit at home from Asian American Donor Program
- Order kit via email asamdonors@aadp.org (Please send them your mailing address.)
- Or call them at 1-800-59-DONOR
- Or take an appointment and visit one of the location of Donor Centers
to:
- Or order a test kit at home from Asian American Donor Program
- Order kit via email asamdonors@aadp.org (Please send them your mailing address.)
- Or call them at 1-800-59-DONOR (Monday to Friday 8am to 5pm Pacific time)
- Or take an appointment and visit one of the location of Donor Centers
September 03, 2006, at 03:25 PM
by 75.17.116.115 -
Changed lines 1-2 from:
Get tested for a match by becoming a registerd Donor
You can become a registered donor in following ways, whichever is most convinient to you.
to:
Get tested for a match by becoming a registered Donor
You can become a registered donor in following ways, whichever is most convenient to you.
Changed line 5 from:
to:
Changed lines 8-11 from:
- A private testing, just for Nirali, without registring in national donor regisiery, is available at cost ($154). You can call 1-800-915-3695 or visit http://www.bonemarrowtest.com. The Results take 21 to 28 business days.
Please read Medical Information for more detail on that.
to:
- A private testing, just for Nirali, without registering in national donor registry, is available at cost ($154). You can call 1-800-915-3695 or visit http://www.bonemarrowtest.com. The Results take 21 to 28 business days.
Please read Frequently Asked Questions for more detail on that.
Changed lines 14-25 from:
Become an active volunteer
- If you are ready to take up the call for save Nirali toll free number let us know, since we have a system which directs the call to various volunteers who are registered for receiving the call. Depending upon the load but in general you would get probably 2 to 3 calls in 4 hours. Also the receiver has an option to accept or send the incoming call to voice mail.
- since calling party would ask you various queries ranging from eligibility, donor process,
what is bone marrow; one needs to go through sites such as marrow.org to get familiarity
with the terms
- Register with savenirali google group savenirali@googlegroups.com and start answering questions that people might have or at least follow whats going on in the group
- We are reflecting all the drives targeted for South Asians on savenirali.com website across US. If you come across new one let us know and we shall update it or if you want we tell you how to edit the information on savenirali.com website.
- If you know there are events, social gatherings in the places near you; you could organize a drive or let us know about gatherings and we would organize a drive. In order to organize a drive you need SAMAR/AADP technicians (if they are busy we could find alternate volunteers so let us know), clean place (tent for Park), chairs and some volunteers to deal with logistics.
to:
Become an active volunteer.
We are constantly looking for people who want to help further more. Please send us an email at volunteer@savenirali.com.
Some of the activity we need help on are
- Attend calls from people who are calling to find out more information.
- Answer emails sent by people sent to Nirali.
- Volunteer for the donor drives we are organizing across us.
Help us organize a donor drive.
If you know of any events or social gatherings; you can let us know and with your help we can organize a drive. We will help with all the aspects of organizing a drive. Again please send us an email at volunteer@savenirali.com
September 03, 2006, at 03:06 PM
by 75.17.116.115 -
Changed lines 3-5 from:
- You can call Asian American Donor Program at 1-800-593-6667 and they will send a test kit at home.
- You can attend a donor drive at various locations, see upcoming drives.
- You can take appointment and visit one of the location of Donor Centers
to:
- Attend a donor drive at various locations, see upcoming drives.
- Or order a test kit at home from Asian American Donor Program
- Order kit via email asamdonors@aadp.org (Please send them your mailing adderss.)
- Or call them at 1-800-59-DONOR
- Or take an appointment and visit one of the location of Donor Centers
Changed line 12 from:
Pass on the word for this noble cause
to:
Spread the word for this noble cause
Changed lines 14-17 from:
Send out the message via email
You can send out following message to as many people as possible.
to:
Changed lines 17-34 from:
Subject: Please Help Save our Daughter
Our 18 month old daughter Nirali Naik has been diagnosed with a rare type of Leukemia. The only hope for her survival is a bone marrow transplant from an Indian donor.
Being a minority community in US, finding a bone marrow match is very rare (unlike blood group matching). The only way to improve the chances of a match and Nirali's survival is to sign up for a simple test to check your marrow type. The test for marrow match is very simple - an oral swab!. And it is absolutely FREE for minority races. If a match is found then a simple procedure is performed on donor to draw the bone marrow and there is no long term effect.
Please visit http://savenirali.com find out how you can help.
To register as marrow donor you can call Asian American Donor Program at 1-800-593-6667 and they will send a test kit at home. Or you can take appointment and visit one of the locations of national registry (marrow.org) . You can also attend a drive at various locations, see upcoming drives.
You can help and we desperately need it. Please help Nirali and Indian community at large. Please pass on this message to everyone you can to raise the awareness of the situation.
Please consider saving a child’s life. There is no bigger gift you can give to anyone.
Thank you
Rucha & Jignesh (Nirali's parents)
to:
August 28, 2006, at 07:18 PM
by Ashish Patel - how to become volunteer
Added lines 35-42:
Become an active volunteer
- If you are ready to take up the call for save Nirali toll free number let us know, since we have a system which directs the call to various volunteers who are registered for receiving the call. Depending upon the load but in general you would get probably 2 to 3 calls in 4 hours. Also the receiver has an option to accept or send the incoming call to voice mail.
- since calling party would ask you various queries ranging from eligibility, donor process,
what is bone marrow; one needs to go through sites such as marrow.org to get familiarity
with the terms
- Register with savenirali google group savenirali@googlegroups.com and start answering questions that people might have or at least follow whats going on in the group
- We are reflecting all the drives targeted for South Asians on savenirali.com website across US. If you come across new one let us know and we shall update it or if you want we tell you how to edit the information on savenirali.com website.
- If you know there are events, social gatherings in the places near you; you could organize a drive or let us know about gatherings and we would organize a drive. In order to organize a drive you need SAMAR/AADP technicians (if they are busy we could find alternate volunteers so let us know), clean place (tent for Park), chairs and some volunteers to deal with logistics.
August 23, 2006, at 03:49 AM
by 75.17.116.115 -
Changed lines 11-12 from:
- Raise awareness about this situation to as many people as you can. Ask them to become a registered donor. Bring them along with you to a Donor Drive
to:
- Raise awareness about this situation to as many people as you can. Ask them to become a registered donor. Bring them along with you to a Donor Drive
August 23, 2006, at 03:49 AM
by 75.17.116.115 -
Changed lines 11-12 from:
- Raise awareness about this situation to as many people as you can. Ask them to become a registered donor.
to:
- Raise awareness about this situation to as many people as you can. Ask them to become a registered donor. Bring them along with you to a Donor Drive
August 23, 2006, at 03:47 AM
by 75.17.116.115 -
Changed lines 19-22 from:
Our 18 month old daughter Nirali Naik has been diagnosed with a rare type of Leukemia. The only hope for her survival is a bone marrow transplant from an Indian donor.
Being a minority community in US, finding a bone marrow match is very rare (unlike blood group matching). The only way to improve the chances of a match and Nirali's survival is to sign up for a simple test to check your marrow type. The test for marrow match is very simple - just a blood draw or even simpler - an oral swab!. And it is absolutely FREE for minority races. If a match is found then a simple procedure is performed on donor to draw the bone marrow and there is no long term effect.
to:
Our 18 month old daughter Nirali Naik has been diagnosed with a rare type of Leukemia. The only hope for her survival is a bone marrow transplant from an Indian donor.
Being a minority community in US, finding a bone marrow match is very rare (unlike blood group matching). The only way to improve the chances of a match and Nirali's survival is to sign up for a simple test to check your marrow type. The test for marrow match is very simple - an oral swab!. And it is absolutely FREE for minority races. If a match is found then a simple procedure is performed on donor to draw the bone marrow and there is no long term effect.
Added lines 28-30:
Please consider saving a child’s life. There is no bigger gift you can give to anyone.
August 23, 2006, at 03:44 AM
by 75.17.116.115 -
Deleted line 5:
- For Bayarea you can also go to Standford Marrowr Donation Program. They have office in Mountain View and Palo Alto you can call Phone 650-723-5532 or e-mail mailto:NMDP_SMSBC@hotmail.com for the appointment. A limited number of screening appointments are available to blood donors each week and at no charge.
August 23, 2006, at 03:42 AM
by 75.17.116.115 -
Changed line 5 from:
- You can take appointment and visit one of the location of national registry (marrow.org)
to:
- You can take appointment and visit one of the location of Donor Centers
August 22, 2006, at 04:09 PM
by 209.220.7.247 -
Changed lines 9-10 from:
More information
Please read FAQ for more information about what if the match is found.
to:
Please read Medical Information for more detail on that.
Pass on the word for this noble cause
- Raise awareness about this situation to as many people as you can. Ask them to become a registered donor.
Send out the message via email
You can send out following message to as many people as possible.
Subject: Please Help Save our Daughter
Our 18 month old daughter Nirali Naik has been diagnosed with a rare type of Leukemia. The only hope for her survival is a bone marrow transplant from an Indian donor.
Being a minority community in US, finding a bone marrow match is very rare (unlike blood group matching). The only way to improve the chances of a match and Nirali's survival is to sign up for a simple test to check your marrow type. The test for marrow match is very simple - just a blood draw or even simpler - an oral swab!. And it is absolutely FREE for minority races. If a match is found then a simple procedure is performed on donor to draw the bone marrow and there is no long term effect.
Please visit http://savenirali.com find out how you can help.
To register as marrow donor you can call Asian American Donor Program at 1-800-593-6667 and they will send a test kit at home. Or you can take appointment and visit one of the locations of national registry (marrow.org) . You can also attend a drive at various locations, see upcoming drives.
You can help and we desperately need it. Please help Nirali and Indian community at large. Please pass on this message to everyone you can to raise the awareness of the situation.
Thank you
Rucha & Jignesh (Nirali's parents)
August 22, 2006, at 01:16 PM
by 209.220.7.247 -
Changed line 1 from:
Become a registerd Donor
to:
Get tested for a match by becoming a registerd Donor
Added lines 9-10:
More information
Please read FAQ for more information about what if the match is found.
August 22, 2006, at 12:46 PM
by 209.220.7.247 -
Added lines 1-8:
Become a registerd Donor
You can become a registered donor in following ways, whichever is most convinient to you.
- You can call Asian American Donor Program at 1-800-593-6667 and they will send a test kit at home.
- You can attend a donor drive at various locations, see upcoming drives.
- You can take appointment and visit one of the location of national registry (marrow.org)
- For Bayarea you can also go to Standford Marrowr Donation Program. They have office in Mountain View and Palo Alto you can call Phone 650-723-5532 or e-mail mailto:NMDP_SMSBC@hotmail.com for the appointment. A limited number of screening appointments are available to blood donors each week and at no charge.
- A private testing, just for Nirali, without registring in national donor regisiery, is available at cost ($154). You can call 1-800-915-3695 or visit http://www.bonemarrowtest.com. The Results take 21 to 28 business days.